Thursday, March 4, 2010

Vote Early, vote often!



Abacus Drogheda Needs Your Vote: in the AIB Better Ireland

Abacus Parents Assocation is working everyday to maintain the additional services which are essential to the most effective intervention for our kids.

Abacus Drogheda is in the final 3 for the AIB Better Ireland grant scheme.

The group who comes 3rd gets €2,000,

2nd Place will get €3,000

But If we win we get €5,000 !!!


You can help simply by Texting:

DROGHED-B to 51303 as many times as you can. And by telling everyone you know to do it too.
Texts are charged at the standard text rate
or
Go to: http://www.betterireland.ie/vote.html

And then select: Louth in the County List and Drogheda in the Branch List,... See more

Then select B for Abaile

You can vote once per day per email address. So if you have several email addresses please place a vote for each one. And it costs you nothing. Nada. Zero.

Wednesday, March 3, 2010

99





Right so, I'm jumping on the bandwagon! Here's my "99".... I've "bolded" the ones I have done.




Started your own blog
(erm... helloooo?)

Slept under the stars

Played in a band

Visited Hawaii

Watched a meteor shower

Given more than you can afford to charity

Been to Disneyland (4th trip to Paris coming up, and twice to Florida! I get stressed if i don't get a regular Disney fix)

Climbed a mountain well, a small hillock in Connemara - but it felt like a mountain at the time!

Held a praying mantis

Sang a solo

Bungee jumped

Visited Paris see comment re Disney - never seen the Eiffel tower, though!

Watched a lightening storm loads - the most impressive one was from the 2o - something floor of our hotel in Thailand. Floor to ceiling windows, very impressive!

Taught yourself an art from scratch


It's a bit matronly, but I cross-stitch

Did this one while waiting for Button to come home








Adopted a child
2, and another in the pipeline!

Had food poisoning

Walked to the top of the Statue of Liberty

Grown your own vegetables a few straggly scallions, and some quite impressive carrots!

Seen the Mona Lisa in France

Slept on an overnight train

Had a pillow fight

Hitch hiked

Taken a sick day when you’re not ill

Built a snow fort

Held a lamb

Gone skinny dipping

Run a Marathon

Ridden in a gondola in Venice

Seen a total eclipse

Watched a sunrise or sunset

Sunrise on the morning we brought Button home











Hit a home run

Been on a cruise

Seen Niagara Falls in person

Visited the birthplace of your ancestors umm....Galway?

Seen an Amish community

Taught yourself a new language i tried to teach myself Thai - and learnt how to say "where is the toilet?" surely, that's all you need?

Had enough money to be truly satisfied

Seen the Leaning Tower of Pisa in person

Gone rock climbing

Seen Michelangelo’s David

Sung karaoke

Seen Old Faithful geyser erupt

Bought a stranger a meal at a restaurant

Visited Africa Egypt - wow!!!

Walked on a beach by moonlight

Been transported by ambulance

Had your portrait painted does a caricature done in Disney World count?

Gone deep sea fishing

Seen the Sistine Chapel in person

Been to the top of the Eiffel Tower in Paris

Gone scuba diving or snorkeling

Kissed in the rain I think I mentioned Galway...... If i didn't kiss in the rain I'd never have been kissed!

Played in the mud








Gone to a drive-in theater

Been in a movie

Visited the Great Wall of China

Started a business

Taken a martial arts class

Visited Russia

Served at a soup kitchen

Sold Girl Scout Cookies

Gone whale watching

Got flowers for no reason

Donated blood, platelets or plasma

Gone sky diving

Visited a Nazi Concentration Camp

Bounced a check

Flown in a helicopter

Saved a favorite childhood toy



Dylan










Visited the Lincoln Memorial

Eaten Caviar

Pieced a quilt

Stood in Times Square

Toured the Everglades

Been fired from a job

Seen the Changing of the Guards in London before my parents moved us back to Ireland we did all the touristy things in London so that my bro and I would have some great memories. needless to say, we don't remember a thing!

Broken a bone

Been a passenger on a motorcycle

Seen the Grand Canyon in person

Published a book

Visited the Vatican

Bought a brand new car

Walked in Jerusalem

Had your picture in the newspaper

Kissed a stranger at midnight on New Year’s Eve

Visited the White House

Killed and prepared an animal for eating

Had chickenpox my mum got out of doing jury service because of my pox - she's still thanking me!!!

Saved someone’s life Technically, if we hadn't adopted Button.....

Sat on a jury

Met someone famous Said hello to Gok Wan in London in November!

Joined a book club

Got a tattoo

Had a baby

Seen the Alamo in person

Swam in the Great Salt Lake

Been involved in a law suit

Owned a cell phone

Been stung by a bee



Friday, February 26, 2010

but...sometimes Autism Rocks!!!!


I want to apologise for my last blog. I know it was all true and written from the heart, but it was a bit depressing. I'm a really optimistic person, to a fault sometimes. My brother once told me that if he lost a leg, I'd say "Ah well, at least you've still got the other one!". It's not that I'm unsympathetic, I just can't help myself! Things can always be worse!

So I've decided to rectify the situation. Because, yes, sometimes autism sucks, but often it ROCKS!
I've been thinking a lot of the positive things that autism brings to our lives, and here's what I've come up with:

Button will never be embarrassed or think it's not cool to give me kisses and hugs. He could not care less about what others think of him, so shows no reluctance to throw his arms around me and kiss me as only he can! Usually by pressing his forehead into my face!

I will never have to worry about him keeping up with the latest trends. No peer pressure for my little man!

He doesn't want the latest game console or gadget (though he does love his/my iTouch). He is completely happy with his baby toys. If it makes a noise or flashes a light, Button is entranced. I stopped buying him the things I thought he should like years ago. This year Santa brought him squirty bath toys! Big success!

Every small achievement is significant and cause for celebration. We rejoice in him and never put too much pressure on him. His happiness is our ultimate goal.

He sees the good in everybody. He is not cynical or jaded or critical of others. To Button the world is full of good people.

He still thinks that Mr Taz and I are absolutely hilarious! We don't get the rolling of the eyes and the "Oh Muuuuuuuum!" that so many of my friends with children of the same age experience.

He has made me a better person. 'Nuff said on that really! No need to explain, you all know what I mean.

So you see, even though we have our down days and times when life seems unbelievably unfair, we also have so much to be grateful for. Time to count our blessings, I think! Oh, I can't believe I nearly forgot the most important one.....we get to skip the queues in Disneyland!!!!

Monday, February 15, 2010

Sometimes Autism sucks!


Recently we decided that Button would not be making his First Communion this year (or any other year, in all probability). It wasn't exactly a tough decision, but it did open up a bit of a Pandora's Box of emotions that I had thought had been firmly laid to rest.

As I have mentioned before, I am not particularly religious. I believe in a higher power, but I'm not a huge fan of organised religion. I think if you're a good person and treat others with respect and dignity, well, that should be enough for anyone's God. But Communion is more than a religious event. it's what 8 year old boys like Button should be doing! A rite of passage, that was part of my vision for the future for him in the days, months and years before he came home. I have very happy memories of my communion day, and quite simply I wanted the same for him.

In the run up to a child's First Communion, there are 5 or 6 special masses arranged where the children all sit together and do the readings and prayers of the faithful. Two weeks ago we went off to mass, fully prepared with his favourite small toys, sweets and the promise of the iTouch for being quiet. It was a disaster. He was poking the lady beside us, shouting and trying to escape from his seat. After about 10 minutes (that felt like 10 hours) we decided enough was enough and made a hasty retreat to the car, with Button kicking and hitting various members of the congregation as he made his way up the aisle.

As I sat in the car waiting for Mr Taz and Belle, I just knew that Button was not ready for this. He simply cannot cope with crowds, and having to sit still for any length of time. And suddenly I was sobbing, as it hit me just how much his autism affects him and us as a family.

We go through our daily life thinking that Button is doing great (which he is), basking in the lovely comments that have been coming home in his Book recently and loving his funny, quirky nature. We live in a little autism bubble. This is our world and we know no different. As Belle grows up, we're getting glimpses of the "other world", but for the main part we potter along thinking everything is going to plan.

Then Wham! one day something hits you, and you realise that you're not as ahead of the game as you think you are. The difference between Button and his peers is remarkable. I watched those little boys and girls sitting quietly with just the odd giggle and murmur of chat. Their hands piously joined in complete innocence and joy, fully aware of the importance of the day they were preparing for, and my heart broke.

I'm generally a very optimistic, positive person. but that day I grieved for all the things Button will never enjoy. Birthday parties, trips to museums, pantomimes, playing football on the street with his mates, these things that you dream about and imagine your little boy doing. They are not part of his life, and in all probability never will be. It sucks.

He is the happiest, most innocent little soul I have ever known. He doesn't care one bit about those things. And 99% of the time, neither do I. I am not at all bothered about the actual communion, it's just a very stark reminder that life with Button is always going to be different from how we had pictured it to be.

Thursday, February 4, 2010

The not-so-invisible Woman!


I'm not the kind of gal who likes to be the centre of attention. I'm very happy to let others take centre stage and just enjoy their reflected glory. But I've discovered in the past few years that I tend to attract a bit of attention when I go out with my children.

All adoptive families have numerous stories about things that people have said to them about their children. It's all part of the territory. We cannot chose who we share the information that Button and Belle are adopted with. It's as plain as the nose on your face! Or in our case, as plain as two very cute, non Caucasian noses! But for some reason this seems to give people the idea that they have a right to ask us the most personal and intrusive questions imaginable.

Most people mean well, and I always assume that they are asking me questions because of a genuine interest. Often people will tell me that their sister /friend/neighbour/second cousin twice removed, has adopted or is in the process, and I'm always happy to talk about it in general. But I will not share my kid's personal stories with anyone other than my kids! Their stories are theirs alone, to share with whom they choose, when they decide.

I have had some great comments though! Like the lady who asked me if Button's "other mother" was young. Because, she thought, he looks like he had a young mother! As opposed to the knackered, worn out one he's been lumbered with, I guess! And the very enthusiastic young woman who came running up to me squealing "Oooooooh! He's gorgeous! What is he?" Ummm, a baby?

Only one time have I ever been offended, and that was by a mature lady who pointed accusingly at Belle and said "That's not your baby"! When I said she was, her response was "well her Daddy must be Chinese so!". Her face when I told her that he was, in fact, from Westmeath, was a picture. You've got to take your pleasure where you can in this life!

My children know where they were born, and that we adopted them. They know what their names were before they became Button and Belle, and they know that they grew in another lady's tummy and that she loved them very much. Surely this is enough for other people to know too?

Thursday, January 28, 2010

Button finds his place


Button started in his new school in September 2007. His class consisted of 4 other boys, all of whom had Autism, his wonderful teacher and 3 or 4 SNAs. They also have a reading teacher. He travelled in and out of school on a bus, with an escort and 2 other children. The bus journey had been my biggest concern - but it turned out to be the highlight of his day! He was as happy as larry on the bus, hopping on without so much as a backward glance at me.

That first day Mr Taz and I collected him, and even though he had been aggressive and unco-operative for Teacher, she still gave him a hug as he was leaving and was very positive in telling us that it was nothing she hadn't seen before, and that we'd get through it. In the car he said "Mummy, I don't go to noisy school any more, I go to Happy School" and that is what we call it to this day. Happy School

The first few months were hard for Button and Teacher. His aggression was very ingrained by now - as far as he was concerned, if he didn't want to do his work, pulling hair or biting should get him out of it. It had worked for him for a long time by now! However, he had met his match with Teacher! She insisted that no matter what the behaviour the task would be completed. Her hair was pulled, she was kicked and bitten but she didn't give in. There would be no reward for bad behaviour.

Even though I wasn't collecting Button from school every day, thanks to his "Book" I knew exactly what he was doing during the day. At the end of every term, his classwork was sent home for me to see, and best of all, Button himself was actually beginning to tell me what he had done that day. He was engaged and excited about school, and the weight of the world had been lifted from my shoulders.

Along with all the usual academic work, Teacher is very insistent that her boys learn important life and social skills. Every day Button has a job to do, some days he sets the table for lunch, or sweeps the floor. But his favourite is to deliver a message to another class. One day I had to collect him early for an OT appointment, and as we were leaving 6 or 7 of the mainstream children said good bye to him by name. I said to Button "everyone knows you", and one little boy overheard me and said "Everybody loves Button! He's so cool!"

And you know what? He is cool!! In Happy School he is respected and loved for who he is. His behaviour is improving every term. And we have gone from every day being a bad day, to maybe 1 or 2 a month. But even when the bad days happen he is cherished and loved. To them he is just Button - his behaviour does not define who he is.

Today Button's book read "Button had a very good day today. He paid very good attention and listened well. In PE he did one full rotation on his bike" Did I mention that they asked me to send in his bike to keep in the hall, so that they could teach him to ride? This is what teaching is all about! This is why when I hear such horror stories among my friends of daily struggles with principals and teachers that I thank the Good Lord (or whatever you believe in) for Happy School.

Wednesday, January 20, 2010

School Days


Shortly after we arrived home with Belle, it was time for Button to start "big school". At this stage he had a "working diagnosis" of autism - basically enough to get him some services, but not all. I enrolled him in our local school, a relatively big, all boys primary. He had and SNA (Special Needs Assistant) in the class with him and was given 5 hours of resource teaching a week.

His first day was absolutely nerve wracking for me. When I met his teacher for the first time, I immediately got the vibe that we were not going to be singing from the same hymn sheet! She was very strict and intimidating, and didn't listen to me at all when I briefly ran through the issues Button had, especially his auditory sensitivity and behaviour.

On picking him up she told me he had not been "too bad", but that he wouldn't do what she asked him! Well, what did she expect? I explained again, that he worked very well for reinforcement, and that all she needed to do was to find something he liked (at this point he loved shape sorters, so anything shape related would engage him!) and tell him "First work, then...."

Her response was "Knowledge should be it's own reward"!

We were very fortunate that his resource teacher was a lovely, calm and capable lady. She took him for the last hour of every day, and he achieved more for her than he ever did for his teacher.
As the days went on, Button's behaviour got worse and worse. His SNA had her hair pulled often, he screamed and screeched his way through the day and threw and ripped his work.

Button's OT and Psychologist had both been in to see the teacher and explain the way to get the best from him. it was important that his behaviour got no reward, and that he knew that he had to finish the task, no matter what he did. I learned later that when he acted up, his SNA would take him out to the yard to have a run around! Teacher also was fond of blowing a WHISTLE at her class of 4 and 5 year olds to keep them in line! Auditory sensitivity obviously didn't mean much to her!

His teacher told me on many occasions that she didn't think Button had autism - that his problems were "behavioural". So she didn't implement any of the strategies suggested to her. I have to say at this point, that I collected Button every day from the Resource room, so rarely spoke to the teacher, and was therefore unaware of how bad the situation was. In hindsight I should have taken him out of there after week 2!

In the Spring of 2007, Button's diagnosis was confirmed, so we could finally look at getting him into a more suitable educational placement. We had heard great things about an Outreach Class in a school about 20 minutes drive away, and were delighted when he was offered a place there. Mr Taz and I went to see the class and were immediately bowled over by the teacher. She was exactly what Button needed, calm, firm and lots of fun! The school Principal was passionate about his little class of ASD kids - he had gone on training courses himself and was so enthusiastic it was infectious. I could imagine Button being very happy there. All we had to do was to get through the rest of the school year.